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Sally, I'm truly grateful for your thoughts and attention to this issue. The post I wrote about tamoxifen adherence continues to bring a variety of comments. What continues to alarm me is the silence from the "big name" breast cancer advocacy organizations, and zero response from groups "advocating" for young breast cancer survivors. There's much to do. Much more than I imagined. I'm on this, and appreciate your help. Jody Schoger
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I'm thrilled for you @DREW to have this challenging aspect of treatment behind you. Treatment is one part of survivorship. You can say goodby to nausea, needles, needle pokes, blood draws every other day, Zofran, dry mouth metallic taste, joint pain, and all symptoms associated with chemo. Now comes a phase that no one can prepare you for but in my estimation, needs as much if not more support than treatment. It's the adjustment to having cancer in your life and what is left in the aftermath. Fatigue. Bills. Insurance hassles. Pressure to be a happy survivor each and every day (we aren't, we're all human). Physical alterations from surgery to treat the cancer. Mental alterations from the onslaught of chemo and anesthesia. Mental stress -- for some, learning a new way to take care of yourself. There's a huge wish to feel DONE. Why don't I feel better? Why don't I like to do this anymore? I didn't cry this much when I was diagnosed, why now? Why now, indeed? Now's the time you can process everything that happened. For me, that took longer than I expected. I needed both physical and lymphadema therapy. I needed new clothes. When my hair grew back initially it was freakin' weird. I was hot, and bothered, and often felt like a raging bull. But that didn't stop me from trying, or working, or training for and completing an Avon Three Day Walk (it was 20 miles a day for three days in a row!) which I loved. In fact, here's the beauty of the whole experience: the more I talked to survivors,and FOR survivors, the more I became myself. PLUS some. The more I do to help people with cancer the more strength God gives me. So, go with the flow. You are already on an awesome path. If I had better understood that there is often a difficult time of adjustment perhaps I could have same myself some grief. Hope it does for you and all who are winding up their chemotherapy right now. Blessings, Jody
LiveStrong and remember, Advil IS magic. Congratulations on this incredible undertaking. Will look forward to reading about your tip.
Toggle Commented Sep 15, 2009 on And so it begins. at Cross Country Ride