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UglyLikeMe
Not everyone has MS, but everyone has something.
Interests: Spirituality, Listening, Reading, Writing, Teaching, Learning, Healing...
Recent Activity
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I will admit that you're the closest I have come There's just something about you that I trust I didn't say but I was sad to see you go You went back to the ghost, I went back to what I know Seems like every night, meet my friends at... Continue reading
Posted Aug 27, 2017 at Ugly Like Me...
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"That's the way it is love...nobody can tell you how to build. Your house of seven swords." ~V.C. Continue reading
Posted Aug 26, 2017 at Ugly Like Me...
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There’s an ancient Chinese secret - a parable of sorts. Wait, it may not be specifically Chinese. It’s an Asian parable of sorts, but I don’t know where exactly it originated from because someone told me and, like I’m always reminding people, I have multiple sclerosis brain, I can’t remember... Continue reading
Posted Aug 16, 2017 at Ugly Like Me...
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Curled up on the big comfy chair in my office, stuck in this song for hours. Feeling way too much. Sometimes that is the closest we will ever get ... to the things we cannot touch. She sensed my connection to music. Said I used it to connect, to the... Continue reading
Posted Aug 1, 2017 at Ugly Like Me...
God I pray it helped. If pain teaches us or connects us to others struggling; like a hand reaching out to hold yours...then I feel like, I can do it. It feels like a calling and less sad. Thank you Tonya...I pray you feel better xoxo
Aww ty Ann. You always read everything lol. Nothing gets by you. You're a good friend. ya know, it's been a long time. The familial situation I was born into, 42 years and the MS, close to a decade. It's just that I block them out most of the time and one thing will present on one front and it affects the other and all the moons align and it's BAD. But I also believe Teal Swan, the negative is as important as the positive if I want to be my authentic self and that the pain has purpose...sometimes I just wish it came in slower, smaller doses lol..ps--I was just eating sushi and I am pretty sure my kid called trying to go to Hawaii with u...is she insane? Just know I know everything to do- I know the protocol and THIS, when I get like this, means I am not right with my faith. Spiritually I am off...so no worries my friend, I'm on it! Ty xoxo PS-The pain never leaves, you just learn to navigate life with it :) Especially when it comes to familial loss <3 I'm OKAY
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So I read that we need 18 hugs just to be emotionally on par. To be really Zen, hug everyone I presume. So I had just woken, followed Tony to the kitchen and tried to give him a solid three hugs to leave the house with. I also figured out... Continue reading
Posted Jul 29, 2017 at Ugly Like Me...
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Music is so important to me. It moves me. When you're losing your mobility, that is so much bigger than it sounds. I never believed I'd hear a song by chance. They inspire me too much. An intangible touch that sometimes pokes me to move, sometimes it's a much needed... Continue reading
Posted Jul 23, 2017 at Ugly Like Me...
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The ugly truth about MY multiple sclerosis is summed up in this picture. My husband is a fit, sexy, cyclist and his life is about riding. And me. And us. He has a pair of compression socks to keep his feet and the blood moving. I like the name. Compress... Continue reading
Posted Jul 22, 2017 at Ugly Like Me...
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My namesake. US. A million stories whispered, secrets laid bare, and dances at dusk. My namesake is US. That is where I come from. Hence, I honor you. As best friends do. In many ways we felt forsaken, abandoned, as orphans do. In hindsight, we were spoiled, we just never... Continue reading
Posted Jul 20, 2017 at Ugly Like Me...
She's right. I can't run, but I can dance. Watch her... Continue reading
Posted Jul 20, 2017 at Ugly Like Me...
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Trying to tiptoe down the stairs. With the heat, and the light, it was like I could see the air. My feet are bare and dancing for you. In hopes to leave you in your slumber. You have been in my life for eight years and three days. Don't tell... Continue reading
Posted Jul 16, 2017 at Ugly Like Me...
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Oh sweetheart, just remind yourself as you wipe your tears That none of this ever mattered. Dreams are just glass. They trick you into reaching. Wanting the universe and romance ...leaving us shattered. Fueling fear. Fear is the opposite of love. Remember that and you will rise above. The glass.... Continue reading
Posted Jul 15, 2017 at Ugly Like Me...
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Anyone who says they know what causes multiple sclerosis is WRONG and should be banned from publishing such a proclamation, and any one person who claims losing 100 pounds cured their MS is sadly mistaken. I am a size 0-2, have eaten a clean, MS diet since the onset of my d/x eight years ago and my most dangerous lesion formed 3 years ago. I am happy for this woman, but so sad when I think of the day she relapses. That aside, you must know there are four different types of multiple sclerosis. That woman is NOT you. Focus on your individualized treatment plan and be very mindful of a healthy lifestyle in the meantime. This will allow you to improve your quality of life and subdue your symptoms for longer intervals of time. However, putting stock in articles like this are incredibly dangerous. Continue reading
Posted Jul 15, 2017 at Ugly Like Me...
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I’m going to start by talking about Kesha. I have a couple visions of Kesha in my head. Not visions, but images from things I’ve seen of her, and I have held on to her words. I do not tend to be musically uplifted by her. I remember trying to... Continue reading
Posted Jul 9, 2017 at Ugly Like Me...
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I take a lot of pictures and videos of happenings in our lives as a family, but also in my own private way, of me doing things like working out, swimming etc. I show the bulk of these to my doctors as my multiple sclerosis is progressing. I do take... Continue reading
Posted Jul 8, 2017 at Ugly Like Me...
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She just smiled, tried to focus only on the clock that hung just above his cocky head, like she was young again and spinning pirouettes. Plainly, she said... Continue reading
Posted May 27, 2017 at Ugly Like Me...
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There's nothing you are enduring that I have not been through myself. Wrap that thought around you like your favorite blanket, warm straight fro the dryer during the coldest of times. In that way, I am holding you still, long after I am gone. There is NOTHING you can do wrong that could make me UNlove you. My love is for you is written in your DNA. It's beautiful and impossible. Continue reading
Posted May 26, 2017 at Ugly Like Me...
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I love these lyrics, this song, and yet when I'm feeling pessimistic it makes think that love is no more than an excuse to do what we want and hurt people. Funny that he brings up faith (I thought he did, he actually says fate, which I could argue is... Continue reading
Posted May 6, 2017 at Ugly Like Me...
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It's my husband's 46th birthday tomorrow and I have spent the entire day running around, procuring gifts and children and homework and cooking and I'm tired. So, so tired. But I feel like something is undone, something is left untied and I can't go to sleep until it's taken care... Continue reading
Posted Apr 21, 2017 at Ugly Like Me...
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When I am gone what will you do? Who will write and draw for you? Someone smarter—someone new? Someone better—maybe YOU! ~Shel Silverstein AJ found The Giving Tree on our book shelf and read the title from the spine, curiously. “The Giviiiing Treeee?” “It is my favorite book, of big... Continue reading
Posted Mar 19, 2017 at Ugly Like Me...
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You were a phonograph, I was a kid I sat with an ear close, just listening I was there when the rain tapped her way down your face You were a miracle, I was just holdin' your space.... Continue reading
Posted Mar 11, 2017 at Ugly Like Me...
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If multiple sclerosis, adversity has taught me anything it is this - there is a light in all of us. Trust it. Some call it God, some call it the universe, some believe it is their own. Whatever you name it, trust it. Be patient. Pay attention to where it... Continue reading
Posted Mar 9, 2017 at Ugly Like Me...
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"I hope life without a chaperone is what you thought it'd be. I hope your brother's El Camino runs forever. I hope the world sees the person that you always were to me. And may all your favorite bands stay together." ~Dawes I know we always spoke in chords and... Continue reading
Posted Mar 5, 2017 at Ugly Like Me...
Thank you Tonya <3 And yes, there IS a better day coming but I am not sure it will be here. If you listen to Dr. Seth (I forget his last name), the money donated, is spread too thin, and when we consider inflation - we are actually LESS funded these days. I listened to him and thought "oh nooo..." lol. But maybe here isn't what it's about...maybe there's a place after this and that's when we are relieved of our MS duties :)And that's okay with me, I am in good company with people like you...we're gonna be okay xoxo PS - find me on FB and send me a friend request xo