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san francisco
battling late diagnosed lyme disease, babesia, prisons, capitalism
Recent Activity
Mother diagnosed with MS and facing life in a wheelchair is cured - after she discovered her symptoms were due to a TICK BITE | Mail Online at least in this case, and so many others! Continue reading
Reblogged Jun 17, 2013 at Free World Conspiracy
september 2012 my dearest Rizzo, i saw this card the other day after i saw you on skype for a minute, looking so pained and so terribly uncomfortable in your own skin, and for some reason it called to me. i think because these chairs, this image makes me think... Continue reading
Posted Nov 7, 2012 at Free World Conspiracy
i'm into my second month without daily IV meds! my first month i happened to be staying at a friend's place with a pool, so i swam that pool like it was my job. my first job was a daily battle with the prison industrial complex (in particular as it... Continue reading
Posted Sep 2, 2012 at Free World Conspiracy
The mystery of autism may never be solved, but research is giving doctors new hope in trying to put the puzzle pieces together. Doctors are starting to find links between children with autism and other diseases that may play a role. One of those links now has a name, it’s... Continue reading
Reblogged Jan 12, 2012 at Free World Conspiracy
i successfully accessed my own port with a needle this week! it wasn't supposed to go down like that, but the infusion center at the hospital where i go in LA for my weekly needle change was closed. hello, hospital? and well, i needed it accessed because i had already... Continue reading
Posted Jan 4, 2012 at Free World Conspiracy
october 1, 2011 tonight i watched the movie 50/50 and cried my eyes out. now i'm writing this entry sitting up at my desk at my sublet in LA where i've come to give the old phd program a go. soon i'll retire to my bedroom to do a small... Continue reading
Posted Nov 30, 2011 at Free World Conspiracy
the worst of the worst of bartonella is over, at least for now. what a doozy! what lingers is some heart pain and racing, but i did a bummer of a test this week (a trans-esophogeal echocardiogram) to rule out infective endocarditis and at least i don't have that. the... Continue reading
Posted Jul 31, 2011 at Free World Conspiracy
two things running my mind this week... one: the ongoing prison hunger strike that started in pelican bay segregation units and spread to more than 6600 people in 13 prisons across california. and the brutal refusal of the corrections department to negotiate basic demands with people who under torturous conditions... Continue reading
Posted Jul 21, 2011 at Free World Conspiracy
many moons ago (maybe march) i was late diagnosed with yet another co-infection transmitted from the original tiny tick i never saw. my lyme doc suspected bartonella when my spine pain persisted two years into treatment, so he tested me again (i tested negative originally) and i came up a... Continue reading
Posted Jul 18, 2011 at Free World Conspiracy
i am feeling just about a million times better. i got in the ocean, minimally and carefully, but i got in! i visited my friends in prison in chowchilla, we took an extra car so i could lie down, but i did it! i went to my first lyme advocacy... Continue reading
Posted May 26, 2011 at Free World Conspiracy
as dangerous as it feels to say, i am feeling better than i have in a long time. in the last years some friends and i came across the idea of a healing crisis, what i like to imagine as a big crisis followed by a full healing. the trouble... Continue reading
Posted Apr 1, 2011 at Free World Conspiracy
i've started and stopped a handful of entries over the past while, but nothing made the cut. i've been posting up in canada and then back at home. the kind of posting where you just hang out, you know, do nothing. mother asked brother what it meant and he said... Continue reading
Posted Feb 24, 2011 at Free World Conspiracy
i'm dizzy from trying to make sense of my symptoms, trying to track patterns and changes, and trying to measure what treatments improve or worsen how i feel. i am tired of this story. i am worlds better than i was 5 months ago, nearly the same as i was... Continue reading
Posted Jan 6, 2011 at Free World Conspiracy
it's true, at least for a lot of community organizations. it's the time of year i wish i had more to give to the orgs near and dear to me. the california coalition for women prisoners (CCWP), the youth justice coalition (YJC), the east side arts alliance (ESAA)... december is... Continue reading
Posted Dec 16, 2010 at Free World Conspiracy
tomorrow i will go to a state disability hearing and the reasons are almost too ridiculous to repeat. basically, if i skip the details of their mess ups and their withholding funds since last spring, this is the summary: i will attend a hearing in person to make a case... Continue reading
Posted Dec 14, 2010 at Free World Conspiracy
i had my first post-op appointment last week. in breaking news, i learned that if i had a cyst/syrinx forming in my spinal cord from compression on my spine from chiari malformation, it would have likely resolved by now - i'm adding likely here because i need to believe there's... Continue reading
Posted Dec 10, 2010 at Free World Conspiracy
spine pain aside, today was a really good one. for pain meds or surgery or iv antibiotics or all or some or none, my head has been so much better again since my post-surgery throes. tonight i made some new age treats to bring to my lyme doc's office tomorrow.... Continue reading
Posted Dec 8, 2010 at Free World Conspiracy
11/24/10 i am recovering from surgery. i can say this with near certainty because my last few days have been less painful and i feel more functional. my day and night nurse routine ended this week when brother left town. i had a series of live-in supporters starting with mother.... Continue reading
Posted Dec 5, 2010 at Free World Conspiracy
check out this week's CBS news story about mona, another lyme patient fighting for treatment. i know this person from a lyme list serve, a tool many of us use to help navigate sickness and care. she worked hard to get the local news in san francisco to cover her... Continue reading
Posted Nov 27, 2010 at Free World Conspiracy
brain surgery recovery. i feel like complaining but i don't have the energy and it's not my strong suit. Continue reading
Posted Nov 18, 2010 at Free World Conspiracy
just when you think you know your enema, you do two back to back on top of a slew of laxatives for days and then NOTHING HAPPENS. i have a well-developed skill set in the area of drug-induced constipation and i have never seen this. funny thing is, just yesterday... Continue reading
Posted Nov 9, 2010 at Free World Conspiracy
surgery is over and i am so happy to be home. i am accepting that i will be in a lot of recovery pain for hopefully just a couple more weeks. the good news is that my pain is no longer cycling out of control on the cocktail of drugs... Continue reading
Posted Nov 8, 2010 at Free World Conspiracy
Friends- Great News! Colby is out of ICU and into a regular room-- pain and other bodily discomforts are more under control. She is sleeping loads. Visitation is still TBA but please feel free to send Colby a message: Continued thanks for everyone's efforts and energy. t Continue reading
Posted Nov 3, 2010 at Free World Conspiracy
Hello friends - T. GhostWriter here - I am pleased to inform you that Colby's surgery went well and she is in ICU recovering. She is alert and visiting with immediate family, all the while still fighting capitalism. Colby will be in ICU for a couple days and we are... Continue reading
Posted Nov 1, 2010 at Free World Conspiracy