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Mona Johnson
Publisher whose father had dementia. Providing the information people with memory loss, their families and caregivers need to make decisions, identify resources and find new ways to live with memory loss.
Interests: dementia, alzheimer's, memory loss
Recent Activity
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Richard Taylor, PhD Note: as a person with dementia and a retired psychologist, Richard is uniquely positioned to think about Alzheimer's and dementia. Here are some of his thoughts about what the headlines on biomarkers mean for people with dementia... Continue reading
Posted Aug 5, 2011 at The Tangled Neuron
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Al Power, MD Along with St. John’s Home, Al Power hosted the informal gathering in Rochester, New York earlier this month. He is an Eden Mentor at St. John’s, a long term care community in Rochester. He’s a geriatrician, author,... Continue reading
Posted Mar 18, 2011 at The Tangled Neuron
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Lakeview Ranch residents Bernie (left) and Sheila-Roo the wallaby with Judy Berry Summary: Lakeview Ranch provides specialized dementia care for people who are at high risk of repeated hospitalizations because of behavioral issues. With careful attention to residents’ emotional and... Continue reading
Posted Mar 7, 2011 at The Tangled Neuron
Interesting study suggesting half of people diagnosed with Alzheimer's may instead have dementia due to other problems in the brain. http://bit.ly/eeE26E Continue reading
Posted Feb 24, 2011 at The Tangled Neuron
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From left: Jim Rohl (St. John's resident), Al Power, Mona Johnson, Sarah Rowan, Richard Taylor (seated), Judy Berry, Julius Keya In a previous post, I wrote about the alphabet soup of organizations working to find new treatments for Alzheimer’s. Much... Continue reading
Posted Feb 20, 2011 at The Tangled Neuron
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Summary: Lifting weights as little as once per week may improve your attention and thinking. Teresa Liu-Ambrose, Ph.D., PT Several studies have shown that exercise might reduce your risk of memory loss, or even improve your memory and thinking. Most... Continue reading
Posted Feb 7, 2011 at The Tangled Neuron
Summary: There is a new emphasis on cooperative efforts to speed the development and approval of Alzheimer’s drugs. The difficulties in bringing new Alzheimer’s drugs to market, along with doubts about a cure, highlight the continued need for research on... Continue reading
Posted Feb 2, 2011 at The Tangled Neuron
There’s been quite a bit of discussion on the Dementia Advocacy and Support Network (DASN) message board about a sentence in the Alzheimer’s Association's generation alzheimer’s report: Today, there are no Alzheimer survivors — none. Several DASN members objected to... Continue reading
Posted Jan 31, 2011 at The Tangled Neuron
One of my friends diagnosed with Alzheimer’s recently talked with his counselor about how depressing his cognitive problems are. He is losing hope that new Alzheimer’s drugs will be available in time to help him. Based on media reports, his... Continue reading
Posted Jan 26, 2011 at The Tangled Neuron
Dedicated scientists and suffering patients. Passionate advocates and expert study groups. Media reports of impending cures, calls for increased funding, and coordinated national efforts to fight disease. These are the ingredients of The Emperor of All Maladies: A Biography of... Continue reading
Posted Jan 11, 2011 at The Tangled Neuron
Summary: A Swedish study questioned the accuracy of the proposed “Dubois criteria” for diagnosing Alzheimer’s. Professor Dubois says the criteria are very specific, and so will miss some cases, but will result in few false positive diagnoses. Researchers are still... Continue reading
Posted Jan 4, 2011 at The Tangled Neuron
Summary: A recent study questions the accuracy of proposed biomarkers for diagnosing Alzheimer’s. Doctors currently make a diagnosis of Alzheimer’s based on symptoms and by ruling out other medical causes for those symptoms. Two groups of researchers have proposed new... Continue reading
Posted Dec 15, 2010 at The Tangled Neuron
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Summary: Television coverage of Alzheimer’s has increased dramatically, but tends to emphasize treatments and personal and celebrity stories over less sensational facts. However, increased use of celebrities, along with expanding coverage in entertainment programs, may help publicize fact-based awareness and... Continue reading
Posted Dec 14, 2010 at The Tangled Neuron
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Summary: The prevalence of dementia in older Americans seems to be decreasing. Whether or not researchers find new medicines to prevent dementia, higher levels of education and late-life activity might reduce dementia rates. Ken Langa, MD, Ph.D. Much has been... Continue reading
Posted Dec 7, 2010 at The Tangled Neuron
Summary: As part of the new health care reform law in the U.S., Medicare will begin covering dementia screening next year. Researchers who developed a new screening questionnaire called AD8 at Washington University in St. Louis believe it is the... Continue reading
Posted Dec 2, 2010 at The Tangled Neuron
Alvaro Fernandez has a good no-nonsense article on healthy brain aging up on SribD. Continue reading
Posted Oct 26, 2010 at The Tangled Neuron
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Marcel at award ceremony Marcel Brasey has been awarded the 2010 "Coup de Coeur" prize by the Swiss Alzheimer's Association of Geneva. Marcel received the prize for his courage and determination in facing Alzheimer's and for creating his French-language site,... Continue reading
Posted Oct 18, 2010 at The Tangled Neuron
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Summary: The New York University Caregiver Intervention lessens caregiver depression, reduces caregiver concern about behavioral symptoms and delays institutionalization. The program may be coming soon to a community center near you. Mary Mittelman, Dr.P.H. In my last post, I wrote... Continue reading
Posted Oct 8, 2010 at The Tangled Neuron
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You’ve probably seen recent media reports on the proposed changes to the guidelines for diagnosing Alzheimer’s, along with an article claiming that “a spinal fluid test can be 100 percent accurate in identifying patients with significant memory loss who are... Continue reading
Posted Sep 15, 2010 at The Tangled Neuron
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Summary: In roundworms, hundreds of proteins form hard clumps as the animal ages. This discovery may contribute to a better understanding of neurodegenerative diseases. Much of the current research on neurodegenerative diseases focuses on a handful of proteins that tend... Continue reading
Posted Aug 17, 2010 at The Tangled Neuron
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Summary: In the absence of a near-term cure for Alzheimer’s, Dr. Ken Kosik believes we should focus on lifestyle changes and managing chronic disease to try to prevent or slow cognitive decline. He thinks “neighborhood cognitive shops” can provide one-stop... Continue reading
Posted Aug 2, 2010 at The Tangled Neuron
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Summary: Researchers at The Rockefeller University have published a paper proposing a new model for how Alzheimer’s and vascular disease interact to worsen memory and thinking. If their theory is confirmed, medicines that block this interaction could someday be an... Continue reading
Posted Jul 13, 2010 at The Tangled Neuron
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If you complain to your doctor about memory loss, should she write a prescription for community involvement? Maybe so. During the recent NIH State-of-the-Science conference, experts presented preliminary evidence that “cognitive engagement” might protect against memory loss. Brain fitness programs... Continue reading
Posted May 27, 2010 at The Tangled Neuron
Population studies have shown that people who report eating more Omega-3 fatty acids (in the form of fatty fish) seem to have a lower risk of developing dementia. Because of this, scientists have hypothesized that fish oil supplements (or supplements... Continue reading
Posted May 12, 2010 at The Tangled Neuron
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Ellen Warner I talked last week with Mark and Ellen Warner, the people behind The Alzheimer’s Store. Although they have a busy online store and send out more than 100,000 print catalogs each year, they have an intensely personal approach... Continue reading
Posted Apr 23, 2010 at The Tangled Neuron