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Mona Johnson

Publisher whose father had dementia. Providing the information people with memory loss, their families and caregivers need to make decisions, identify resources and find new ways to live with memory loss.

Interests: dementia, alzheimer's, memory loss

Recent Activity

The I CAN! I WILL! Library: A Major Milestone

Sometimes it feels like not much has happened in the world of Alzheimer’s and dementia since my father died. We still don’t know what causes dementia, and there are still no highly effective treatments. But there has been progress in... Continue reading

Posted Sep 10, 2011 at The Tangled Neuron

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The Musician's Mind Graphic Novel - 4th Strip

click on strip to enlarge Here's the 4th strip of The Musician's Mind, the interactive graphic novel I've been working on. Parker's wife Vanessa owns and runs a high-end home design and accessories store called Domesticity. Since their marriage 25... Continue reading

Posted Sep 2, 2011 at The Tangled Neuron

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Lakeview Ranch Model Featured in AHRQ Innovations Exchange

My friend Judy Berry's Lakeview Ranch Model of Specialized Dementia Care™ is featured in the U.S. Agency for Healthcare Research and Quality's (AHRQ's) Innovations Exchange. This publication is a clearinghouse for innovations and tools to improve the quality of healthcare.... Continue reading

Posted Aug 22, 2011 at The Tangled Neuron

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The Musician's Mind: Need Input on Character Interaction

The Musician's Mind is an interactive graphic novel about Alzheimer's. The interactive part means that readers can influence the story and characters via blog comments and by “talking” with fictional characters via Facebook, Twitter, online forums, and perhaps some live... Continue reading

Posted Aug 19, 2011 at The Tangled Neuron

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The Musician's Mind Graphic Novel - 3rd Strip

click on strip to enlarge In the third strip of The Musician's Mind graphic novel about Alzheimer's, Parker is back home in Chicago, being interviewed for a nationally broadcast public television program. He sticks to his favorite theme of truth... Continue reading

Posted Aug 17, 2011 at The Tangled Neuron

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More About The Musician's Mind

click on strip to enlarge Here's the second strip of The Musician's Mind, the interactive graphic novel I've been working on. The story is about Parker Sanningham, a concert pianist who is diagnosed with Alzheimer's and disappears at the height... Continue reading

Posted Aug 11, 2011 at The Tangled Neuron

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Thanks to Penny Peterson for the link to a...

Thanks to Penny Peterson for the link to a fascinating and entertaining TED video on creativity and the brain - http://www.ted.com/talks/charles_limb_your_brain_on_improv.html Continue reading

Posted Aug 6, 2011 at The Tangled Neuron

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Biomarkers: Some Thoughts from Richard Taylor

Richard Taylor, PhD Note: as a person with dementia and a retired psychologist, Richard is uniquely positioned to think about Alzheimer's and dementia. Here are some of his thoughts about what the headlines on biomarkers mean for people with dementia... Continue reading

Posted Aug 5, 2011 at The Tangled Neuron

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Introducing The Musician's Mind: A Graphic Novel About Alzheimer's

click on strip to enlarge I've been working on an interactive graphic novel called The Musician's Mind. The story is about Parker Sanningham, a concert pianist who is diagnosed with Alzheimer's and disappears at the height of his career. That's... Continue reading

Posted Aug 2, 2011 at The Tangled Neuron

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Dementia Beyond Drugs: A Book by Al Power

Al Power, MD Along with St. John’s Home, Al Power hosted the informal gathering in Rochester, New York earlier this month. He is an Eden Mentor at St. John’s, a long term care community in Rochester. He’s a geriatrician, author,... Continue reading

Posted Mar 18, 2011 at The Tangled Neuron

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Lakeview Ranch: Reducing "Challenging Behaviors" in Dementia

Lakeview Ranch residents Bernie (left) and Sheila-Roo the wallaby with Judy Berry Summary: Lakeview Ranch provides specialized dementia care for people who are at high risk of repeated hospitalizations because of behavioral issues. With careful attention to residents’ emotional and... Continue reading

Posted Mar 7, 2011 at The Tangled Neuron

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Interesting study suggesting half of people...

Interesting study suggesting half of people diagnosed with Alzheimer's may instead have dementia due to other problems in the brain. http://bit.ly/eeE26E Continue reading

Posted Feb 24, 2011 at The Tangled Neuron

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New Ideas in Dementia Care

From left: Jim Rohl (St. John's resident), Al Power, Mona Johnson, Sarah Rowan, Richard Taylor (seated), Judy Berry, Julius Keya In a previous post, I wrote about the alphabet soup of organizations working to find new treatments for Alzheimer’s. Much... Continue reading

Posted Feb 20, 2011 at The Tangled Neuron

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Can Lifting Weights Improve Your Attention and Thinking?

Summary: Lifting weights as little as once per week may improve your attention and thinking. Teresa Liu-Ambrose, Ph.D., PT Several studies have shown that exercise might reduce your risk of memory loss, or even improve your memory and thinking. Most... Continue reading

Posted Feb 7, 2011 at The Tangled Neuron

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Alzheimer's Drugs in Trial, Part 2

Summary: There is a new emphasis on cooperative efforts to speed the development and approval of Alzheimer’s drugs. The difficulties in bringing new Alzheimer’s drugs to market, along with doubts about a cure, highlight the continued need for research on... Continue reading

Posted Feb 2, 2011 at The Tangled Neuron

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Are There Alzheimer's Survivors?

There’s been quite a bit of discussion on the Dementia Advocacy and Support Network (DASN) message board about a sentence in the Alzheimer’s Association's generation alzheimer’s report: Today, there are no Alzheimer survivors — none. Several DASN members objected to... Continue reading

Posted Jan 31, 2011 at The Tangled Neuron

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Alzheimer's Drugs in Trial, Part 1

One of my friends diagnosed with Alzheimer’s recently talked with his counselor about how depressing his cognitive problems are. He is losing hope that new Alzheimer’s drugs will be available in time to help him. Based on media reports, his... Continue reading

Posted Jan 26, 2011 at The Tangled Neuron

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The Emperor of All Maladies: Book Review

Dedicated scientists and suffering patients. Passionate advocates and expert study groups. Media reports of impending cures, calls for increased funding, and coordinated national efforts to fight disease. These are the ingredients of The Emperor of All Maladies: A Biography of... Continue reading

Posted Jan 11, 2011 at The Tangled Neuron

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Should You Ask for One of the New Alzheimer's Diagnostic Tests?

Summary: A Swedish study questioned the accuracy of the proposed “Dubois criteria” for diagnosing Alzheimer’s. Professor Dubois says the criteria are very specific, and so will miss some cases, but will result in few false positive diagnoses. Researchers are still... Continue reading

Posted Jan 4, 2011 at The Tangled Neuron

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New Alzheimer's Diagnostic Techniques: Not Ready for Widespread Use?

Summary: A recent study questions the accuracy of proposed biomarkers for diagnosing Alzheimer’s. Doctors currently make a diagnosis of Alzheimer’s based on symptoms and by ruling out other medical causes for those symptoms. Two groups of researchers have proposed new... Continue reading

Posted Dec 15, 2010 at The Tangled Neuron

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Television coverage of Alzheimer's

Summary: Television coverage of Alzheimer’s has increased dramatically, but tends to emphasize treatments and personal and celebrity stories over less sensational facts. However, increased use of celebrities, along with expanding coverage in entertainment programs, may help publicize fact-based awareness and... Continue reading

Posted Dec 14, 2010 at The Tangled Neuron

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Education and Employment: Nondrug Ways to Prevent Alzheimer's and Dementia?

Summary: The prevalence of dementia in older Americans seems to be decreasing. Whether or not researchers find new medicines to prevent dementia, higher levels of education and late-life activity might reduce dementia rates. Ken Langa, MD, Ph.D. Much has been... Continue reading

Posted Dec 7, 2010 at The Tangled Neuron

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Alzheimer's and Dementia Screening

Summary: As part of the new health care reform law in the U.S., Medicare will begin covering dementia screening next year. Researchers who developed a new screening questionnaire called AD8 at Washington University in St. Louis believe it is the... Continue reading

Posted Dec 2, 2010 at The Tangled Neuron

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"Healthy Brain Aging" Article

Alvaro Fernandez has a good no-nonsense article on healthy brain aging up on SribD. Continue reading

Posted Oct 26, 2010 at The Tangled Neuron

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Marcel Brasey and Anne-Claude Juillerat Van der Linden Awarded Coup de Coeur Prize

Marcel at award ceremony Marcel Brasey has been awarded the 2010 "Coup de Coeur" prize by the Swiss Alzheimer's Association of Geneva. Marcel received the prize for his courage and determination in facing Alzheimer's and for creating his French-language site,... Continue reading

Posted Oct 18, 2010 at The Tangled Neuron

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