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Stephanie Boucher
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Three years ago, we were sitting in the surgical waiting room at Children's National, waiting for Dr. Keating to tell us Victoria was out of surgery and that everything had gone smoothly. We had hoped and prayed for so many... Continue reading
Posted Jun 15, 2014 at Everyday Chaos
Happy New Year!!! I haven't been here in a very long time, but I have been composing posts in my head for months which means it is time to be here again. Right after I put up the post about... Continue reading
Posted Jan 4, 2014 at Everyday Chaos
Two years ago we were telling Victoria that the reason she needed brain surgery was because her brain was too big to fit into her skull. Yep-That came back to bite us but we were completely new to the whole... Continue reading
Posted Jun 18, 2013 at Everyday Chaos
To those who serve our Country or who have served our Country - Thank You. To those who have given their lives in service to our Country - Thank You. To the families who have lost a loved one in... Continue reading
Posted May 27, 2013 at Everyday Chaos
We started out the Memorial Day weekend with a photo shoot with the kids. Alex is graduating from 8th grade in a few short weeks and we needed graduation pictures. So, I started my day with coffee on the front... Continue reading
Posted May 25, 2013 at Everyday Chaos
Today was one of the best Mothers Day ever (as Victoria would say). It was a beautiful day spent with my husband and children tinkering in my gardens. For me there is nothing better. I hope today was special for... Continue reading
Posted May 12, 2013 at Everyday Chaos
Having a chronic illness puts you in right smack in the middle of the medical community. You deal with doctors, nurses, techs, office staff on a regular basis. You deal with the less than stellar members of each profession and... Continue reading
Posted May 7, 2013 at Everyday Chaos
Friday we headed to Baltimore for Nick's yearly appointment with Dr. Francomano. It was a very productive appointment. Overall, we are managing Nick's obvious EDS symptoms quite well. Of course EDS has obvious symptoms and not so obvious symptoms. Add... Continue reading
Posted May 6, 2013 at Everyday Chaos
WOW! What a great weekend. Super busy but a spectacular weekend. Victoria made her First Holy Communion on Saturday. Victoria enjoyed her special day and had a great time at her party with close friends. Here are a few pictures... Continue reading
Posted May 5, 2013 at Everyday Chaos
Today we raise our own EDS awareness by heading to Baltimore to see Dr. Francomano. This is the first of three appointments this month. Nick is the first one up to bat this year. We have quite a few things... Continue reading
Posted May 3, 2013 at Everyday Chaos
O.K. I will admit the photo caption is a bit of an over simplification of EDS - but I like it. EDS is a lifelong, chronic illness that effects every system in the body. And though you may look good... Continue reading
Posted May 2, 2013 at Everyday Chaos
So I have been away from here for awhile and now I am back. We have had some great times during our absence from here. We have definitely had a few cake experiences. If you have been reading this blog... Continue reading
Posted May 1, 2013 at Everyday Chaos
It is May 1 and that means it is EDS Awareness Month. I never really know how to deal with this month. I am torn and pulled in several directions. First, I know how important it is to make more... Continue reading
Posted May 1, 2013 at Everyday Chaos
From the day the kids and I were first diagnosed with EDS, Chiari etc. we have learned how to deal with "The Look." There are two types of The Look. The Look of shock and terror that you get from... Continue reading
Posted Apr 26, 2013 at Everyday Chaos
When you are dealing with chronic illnesses you try very hard during the good times to forget about your condition. When things are going well, it is easy to push things off, to at the very least try to forget... Continue reading
Posted Apr 25, 2013 at Everyday Chaos
(image from Botgirl's Digital Playground) For starters I am not usually one to sit back and analyze what I have done, what I should have done, what I could have done, etc. My motto is step up to the plate... Continue reading
Posted Jan 19, 2013 at Everyday Chaos
Yes, I am late in posting so many things, but I am working on a year in review post so that should cover my delinquency. However, here are the Christmas photos for this year. This was the scene that greeted... Continue reading
Posted Jan 6, 2013 at Everyday Chaos
Isn't it funny how we wait and wait and hope for certain conversations - but never get to have them? Sometimes we try to force conversations that we want to have only to have the whole thing end in disaster.... Continue reading
Posted Dec 14, 2012 at Everyday Chaos
Tis the holiday season which of course means we need to go and pick out a Christmas tree. From our very first Christmas together under the same roof, this tradition has inevitably resulted in Steven and I agreeing to disagree.... Continue reading
Posted Dec 4, 2012 at Everyday Chaos
Well we went to see the Endocrinologist at Children's National Medical Center on Wednesday last week. My hope for this appointment was two prong: (1) rule out Cushings Syndrome and (2) find an endocrinologist who would be able to help... Continue reading
Posted Nov 27, 2012 at Everyday Chaos
I can't believe I have been here so infrequently this year. Despite my lacking of posting I have wanted to be here ... but ... to be honest there are a great deal of buts and I really can't go... Continue reading
Posted Nov 19, 2012 at Everyday Chaos
One of the things I love most about this time of year is change. I am not always a fan of being the one responsible for instituting change - but let's be honest - change usually requires some action on... Continue reading
Posted Oct 9, 2012 at Everyday Chaos
image from On Saturday we all participated in the Chiari Walk Across America. To be honest it was the absolute last thing that I wanted to do on Saturday morning. I was tired. The kids were wiped - it... Continue reading
Posted Sep 24, 2012 at Everyday Chaos
A friend on Facebook recently sent me a link to a Fox news story with a note "about your children's doctor." The link was to a story on Fox news about Dr. Keating - you can read it here. The... Continue reading
Posted Sep 17, 2012 at Everyday Chaos
I had high hopes this year that I would be all over Chiari awareness month. After everything we went through with Victoria I had planned on shouting information from the rooftops. Funny thing about even the best laid plans they... Continue reading
Posted Sep 6, 2012 at Everyday Chaos