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Interests: reading, writing, crocheting, coloring, arts and crafts, quiet evenings at home, good coffee and quality time with my family....., time out on the patio good books
Recent Activity
A few weeks ago, on our last summer afternoon, my girls and I escaped the heat by heading to our local movie theatre. As we stood waiting in line at the snack counter, my soon to be freshman took hold of her younger sister’s wheelchair, took the movie tickets from my hand, and called over her shoulder “ I got Zoe, Mom, we’ll go grab our seats” Zoe smiled and waved while I stood stunned, watching my oldest daughter making her way to the theatre, pushing Zoe, weaving through the crowds with confidence. Once she reached our theatre, I could... Continue reading
Posted Sep 2, 2014 at Special Needs Mom
“Hold Me.” “Send Wine”. The social media updates are a never ending stream of back to school. Photo after photo of new outfits, backpacks and nervous smiles. We want them to go, yet still want to keep them close. We say goodbye each morning, trusting that at the end of each school day, our kids will come home safe. But what if ? What if the unthinkable happens? Elementary students at Plaza Towers were most likely loading up their backpacks and preparing to get in line for dismissal last May when a tornado tore through Moore, Oklahoma at the end... Continue reading
Posted Aug 23, 2014 at Special Needs Mom
I can totally hang content at home.. the older I get the more nervewracked I get being away.. I binged on House Of Cards, havent touched Downtown Abbey or Mad Men.. maybe I should? I am a total audiobook junky though! I just clicked on this blog update as it was featured on Typepad Showcase page, right above mine! cool- hang strong with the solo parenting.. oh and how was the good readers author marketing thing- ( saw your facebook note!) it sounded intriguing.. take care! See you at BlogHer!
1 reply
It has been almost ten years since my first visit to the Cleveland Clinic, when we first and finally found a diagnosis for my daughter Zoe. Less than 2 years later, we returned, to discover that Zoe’s big sister had the same metabolic disorder. That is when the scientific study of genetic medicine made my decision for me, I would have no more babies. We never planned to have more kids, but we were so happy as a family, we never really planned not to. My husband was 50 when our first daughter was born, and he was thrilled to... Continue reading
Posted Feb 28, 2014 at Special Needs Mom
“ Can I die, Mom?” my daughter Zoe asks. She is standing in her walker, pausing, with one hand on her hip, in a perfect petulant tween pose. Her hair, middle school trendy, straight and long, flows over one shoulder onto the front of her graphic t-shirt. I take all of this in, how good she looks as Zoe’s eyes meet mine. She is searching my face as if this is an easy question and the answer should be floating through the air, on it’s way back to her by now. Why is she is asking me this? I wonder.... Continue reading
Posted Feb 13, 2014 at Special Needs Mom
Thanks Allison.. absolutely.. it's amazing the way they can inspire.
You too Rose? Oh how our kids inspire us!
Thanks so much Vikki for stopping by- hope you are surviving all the snow!
Thanks Charissa for stopping by-it's great to see all the awesome promise!
“ Mom, when I grow up I want to be a nurse so I can help people.. " Mommy, will you teach me everything you do, so I know how to be a good Mom?” “Someday, I’ll drive a big car like this ..” My daughter Zoe has been telling me these things since the age of 6 or 7, when her ability to simply exhale and tell me what she was thinking , finally arrived. Her words, still slow with awkward stops and starts, were a gift I so desperately desired. The doctors had assured me the day would... Continue reading
Posted Jan 31, 2014 at Special Needs Mom
When my husband and I were newly married, and our life with no kids- still streamlined and slow, we had plenty of time to dream about the family we would grow. It was the start of one holiday season, when the Sears Christmas Wish book arrived, that we got to talking about holiday traditions. In his family, his Uncle dressed up as Santa Claus every Christmas Eve. With tears in his eyes and sometimes laughter, my husband told me story after story. How the children would squeal and the adults join in, as Santa hand pulled gift after gift ,... Continue reading
Posted Dec 18, 2013 at Special Needs Mom
Thanks Traci, and thanks for stopping by. Wishing you and your family a beautiful Holiday season!
Thanks Kim.. so nice to know my words are appreciated. Am grateful! :)
I sat down today with pen and paper, to reflect and record what I am truly thankful for this Thanksgiving. Most of my notes I email; notes to the teacher, quick questions to the doctor, reminders to my husband, even fun notes to my girls. Maybe it is the absence of handwritten notes today that generates such emotion and contributes to the viral fame with notes of shame left on restaurant receipts, anonymous notes left in the neighbor's mailbox or on car windows. In honor of the holiday season, and in effort to spread some holiday cheer, here is my... Continue reading
Posted Nov 26, 2013 at Special Needs Mom
Somebody is smiling because she helped win a cake at the Harvest Festival cake walk! We made a great team and had fun.. like every holiday, celebrations are about what works for your family. Read my Halloween story about The Gift Of A Pumpkin, here at, and my tips for how to find your own Halloween fun. I had the pleasure of rubbing elbows with the Queen herself as she inspired the audience at the BlogHer convention this summer. Queen Latifah was emceeing the BlogHer Voice Of The Year celebration, and she did an amazing job honoring the readers... Continue reading
Posted Oct 27, 2013 at Special Needs Mom
“ I sit and listen to parents and grandparents describe the texture of their days as they sit next to their tiny babies, wiling them to be okay. I recognize the same look in the faces of mother after mother, the fear,-the not-knowing, the worry, the pure exhaustion.” - Ready For Air: A Journey Through Premature Motherhood by Kate Hopper. This look Kate Hopper describes, I have worn many times. And so have the mothers I share space with- at hospitals, therapy appointments and doctor’s offices, women that like Kate, unexpectedly find they are dealing with their own illness, a... Continue reading
Posted Oct 14, 2013 at Special Needs Mom
So nice to hear this hit home with me. When I sit down to write, it is the moments that turn into stories we weave together. It was a good reminder for me, and I am so happy you found sameness here!
Toggle Commented Oct 3, 2013 on Splashing In The Rain at Special Needs Mom
Lisa, so sweet to hear she got to splash today! life has a funny way of slowing us down. Thanks for reading this and for sharing my blog & facebook page! have a great day with your sweetie!
Toggle Commented Oct 3, 2013 on Splashing In The Rain at Special Needs Mom
It is bedtime, and my daughter Zoe, fresh from her bath, is heading to the kitchen table for her nightly medicine and dessert. She is tired, I can tell, by the slow way her legs come together, causing a clumsy and uneven gait. Step by step, she makes her way pulling her walker behind her. She moves forward to the promise of cookies and milk, humming her way down the hall. Maybe it it is the break in the hot Arizona weather, the cool breeze, or the beauty of our backyard desert sky, but something is calling to me. So... Continue reading
Posted Sep 25, 2013 at Special Needs Mom
I know I’m not alone. I get smiles in solidarity, hear the groans at the local Starbucks, and share the frazzled Mom look of yoga pants, messy hair and tired eyes. It’s called back to school shock. While some Moms are dancing in their driveways, Mom’s like me are charting lists, emailing teachers, staying up late to prep and rising early, just to guzzle down some coffee before the stressful start of the school morning begins. Our kids struggle with back to school-from getting out the door in the morning to falling asleep at night - and often every school... Continue reading
Posted Sep 5, 2013 at Special Needs Mom
Your welcome- take care and thank you
Thanks for thinking about this..