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Cavan's Blog Site
Rare Disease Day Reception Northern Ireland Assembly 2010
The Cavan Tommy Hoey Trust (IRELAND)
Interests: We are a non profit Trust we are The Cavan Tommy Hoey Trust (IRELAND) we are working to help people with rare diseases and are working to establish The Cavan Tommy Hoey Trust Centre in Northern Ireland to help children and their families cope with the diagnosis of rare diseases Our Address is The Cavan Tommy Hoey Trust (IRELAND) 86 Palmerston Road Sydenham Belfast Co Antrim Northern Ireland Telephone 02890654471 email terryhoey@the-cavan-tommy-hoey-trust.org.uk web site http://the-cavan-tommy-hoey-trust.org.uk
Recent Activity
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Rare Disease Day 2010 was Northern Ireland first ever Rare Disease Event we all wish Rare Disease Day 2011 an even bigger event being held this year in Heynes Hall Holywood Road Belfast on the 28th Feb 2011 Doors Open 10-00am we hope to see you there Continue reading
Posted Jan 27, 2011 at rare disease day belfast
I have been told I am always banging on about something, a pain in the ass, always shouting about something,In life you have choices you can go along as you do every single day and do not try to change anything as long as things are OK for you, why... Continue reading
Posted Jan 27, 2011 at Cavan's Blog Site
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Jul 22, 2010
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Jul 22, 2010
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Jul 22, 2010
Hi Everyone The Cavan Tommy Hoey Trust (Ireland) is organising Northern Ireland Rare Disease Day 2011 if you would like to be included in the event or would like to sponsorship please contact The Trustees The Cavan Tommy Hoey Trust (Ireland) 86 Palmerston Road Sydenham Belfast BT4 1QD Telephone +02890654471... Continue reading
Posted Jul 22, 2010 at Cavan's Blog Site
Cavan's Blog Site is now following Account Deleted
Jul 16, 2010
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Jul 16, 2010
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Jul 16, 2010
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Jul 16, 2010
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Jul 16, 2010
The Trustees of The Cavan Tommy Hoey Trust Ireland would like to thank the member of parliament of East Belfast Northern Ireland Naomi Long for accepting our Invitation to act as patron to the Cavan Tommy Hoey Trust (Ireland)http://the-cavan-tommy-hoey-trust.org.uk Continue reading
Posted Jul 13, 2010 at Cavan's Blog Site
Are you interested in voluntary work then contact trustees@the-cavan-tommy-hoey-trust.org we are looking for : Fund-raisers, support workers,site finders, Continue reading
Posted May 7, 2010 at Cavan's Blog Site
We are looking for volunteers and voluntary workers to help us organize in the South of Ireland for information contact trustees@the-cavan-tommy-hoey-trust.org.uk Continue reading
Posted May 7, 2010 at Cavan's Blog Site
Hi Everyone We are planning Rare Disease Day 2011 if you would like to take part in this event please write to: The Cavan Tommy Hoey Trust (IRELAND) 86 Palmerston Road Sydenham Belfast Co Antrim Northern Ireland BT4 1QD email trustees@the-cavan-tommy-hoey-trust.org.uk Continue reading
Posted May 7, 2010 at Cavan's Blog Site
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Hemophagocytic Syndromes Sourced From Histiocytosis Association of America The Cavan Tommy Hoey Trust Rare Disease Day Reception Northern Ireland Assembly 2010 Cavan Pictured on the day Hemophagocytic lymphohistiocytosis (HLH) is a rare disorder of the immune system primarily affecting young infants and children. Although physicians have written about the disorder... Continue reading
Posted Apr 14, 2010 at Cavan's Blog Site
Hi Everyone Welcome to my new blog you will be able to read about everything we are doing at the Cavan Tommy Hoey Trust, we will keep you updated on loads of information, we have loads to tell you and I have lots of pictures to upload, I also have... Continue reading
Posted Apr 13, 2010 at Cavan's Blog Site
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Apr 13, 2010