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Jeanne Barnett
New York City
teacher, web developer, patient advocate
Interests: wife, mom, Gigi to 8 museum goer, birder iPAD, QR codes, MOBILE, patient adherence
Recent Activity
As a moderator/founder of a vibrant online social health community: cysticfibrosis.com, I can attest to hundreds of messages in which e-patients discuss their PFTs (pulmonary function tests). Members are so in tune with these numbers, they often add them to their signatures along with their genetic mutation codes. Imagine how... Continue reading
Posted Oct 2, 2012 at Jeanne Barnett's Blog
There are many factors which can influence the level of patient adherence in any given treatment, Jeanne Barnett looks at how social platforms can provide the answers and presents her findings. You may already be aware of the great success of the Khan Academy for educating students with self-paced online... Continue reading
Posted Jun 13, 2012 at Jeanne Barnett's Blog
Medrise.com As a patient advocate and the owner of an active social health community: cysticfibrosis.com , I liken patient health communities to islands of crystal gardens of holographic distortions. Members of these communities are trying to shed light on every imaginable topic in their treatment regimens. They are amazingly open,... Continue reading
Posted Apr 17, 2012 at Jeanne Barnett's Blog
The non-profit CFTechnology is devising digital solutions to help people with cystic fibrosis Since 1996, I have run the website CysticFibrosis.com. When physically together, people with CF run the risk of bacterial cross-contamination. Our site is an antidote to this danger because CF patients use our digital technology to safely... Continue reading
Posted Oct 27, 2011 at Jeanne Barnett's Blog
Jeanne Barnett argues that pharma needs a ‘chronic care university’ to create compliance, build knowledge, and reduce costs In a recent article, I put forth a patient manifesto: Make the waiting room a digital classroom. I have run the social health community cysticfibrosis.com since 1996. Once a patient is diagnosed,... Continue reading
Posted Sep 19, 2011 at Jeanne Barnett's Blog
Google+, Google's new social network, currently in Beta, comes at a perfect time for pharma. Pharma firms have been volleying with the idea of social for a while now, dipping their toes in the water at Facebook, creating their own communities, and working with foundations online. There are always lots... Continue reading
Posted Jul 8, 2011 at Jeanne Barnett's Blog
Paul Tunnah interviews Jeanne Barnett Medrise and CysticFibrosis.com It would seem that the patient has always been one step ahead of pharma and healthcare providers when it comes to using the internet for information about their disease. A quick Google search on any disease area is sure to uncover a... Continue reading
Posted Jun 16, 2011 at Jeanne Barnett's Blog
How self-tracking systems can improve clinical trials An enhanced process of clinical trials is emerging. Small, exclusive, formal data sets, limited experiments, and narrow questions requiring rigorous measurement can now evolve from large populations, able to quickly quantify themselves with what would have been an inordinate amount of data, and... Continue reading
Posted Jun 16, 2011 at Jeanne Barnett's Blog
Why is time spent in a doctor's waiting room such a waste of time? Jeanne Barnett explains how pharma can help make it worth the wait for patients The doctor's waiting room is a digital classroom where pharma can seize a patient's undivided attention. Recently, I spent a lot of... Continue reading
Posted Jun 16, 2011 at Jeanne Barnett's Blog
CysticFibrosis.com is an “e-Patient Social Health Community” that has, I am proud to say, been called a “hub of information,” with pharmaceutical and hospital websites throughout the world now linking to it. When I started this social health community in 1996, I was a teacher and had no preconception about... Continue reading
Posted May 13, 2011 at Jeanne Barnett's Blog
By now, most of us have figured out that ‘health 3.0’ is data moving through mobile devices. We have downloaded apps of varying usability and interest; oftentimes, our desktops become cluttered with lots of free apps. With a modest investment, we are learning mobile brings us more for less. Last... Continue reading
Posted May 13, 2011 at Jeanne Barnett's Blog
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Jeanne Barnett, Medrise.com blogs about QR codes and how they can work to Mobilize patient relationships with all the stakeholders, doctors, healthcare providers, family, friends, industry leaders and payers. Continue reading
Posted Mar 30, 2011 at Jeanne Barnett's Blog
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Mar 30, 2011