Good Morning Boys, I just woke up and figured I should type while I’m still fresh. At this point in the disease, my cognitive and motor skills have started to decline. You both know I’m a stickler on proper spelling and run on sentences. I now do both. lol I... Continue reading

I wanted to write while I was having a good day and felt up to it. My new life consists of lots of naps (took three yesterday), working out (at a very slow pace), and making peace with God (which has been a hard battle). I’m taking a ton of... Continue reading

Hello Dears, It’s early and T, I just sent you off to school. I’m very tired today. I had two naps yesterday and still feel like I need more rest. Damn Huntingtons. T, you told your grandma last night that you know how she felt when she lost her Mom... Continue reading

I read on Facebook a story about a gentleman who attempted to get into a bar and grille in London. The gentleman was in a later stage of Huntingtons than I am. He already had the drunken and gated walk. That is one stage after mine. Apparently, in Europe they’re... Continue reading

Hi, I’m a 31 Mother of two that lives in Nashville, TN. I went into the Hospital for inappropriate sinus tachycardia and left completing a DNA test for the same disease my Father passed away from. I got the results from the test two weeks ago on this coming Monday.... Continue reading

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My name is Adrienne Lovett and I am battling Huntington Disease. The disease consists of Dementia, Parkinson, and Als. I’m on permanent disability, due to the nature of the disease being terminal. Due to the rarity of the disease, as it is rare and currently no cure or medicine for the disease and extreme of the expenses that come with such an extreme diagnosis. I am looking to raise money to help me pay for medical equipment, medical bills (which is currently 20,000), medication, and other expenses such as living expenses. My husband works and is also my caregiver. I’m being referred for palliative care at the present moment. Continue reading

Have you ever heard of the 5 stages of grieving? They are denial, anger, bargaining, depression, and acceptance? I have gone through all stages multiple times since recently being diagnosed with Huntingtons disease. Continue reading