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Glad the news is so good!
Dr. FancyPants, you old softie
Home! We got home from the 'Nati late Saturday afternoon. It was a whirlwind trip, and somehow we managed NO flight delays! There were still some harrowing hours chasing an overtired toddler through O'Hare during a layover, but overall, the traveling was fine. The hospital was fine, too. I love ...
Hooray! May your days continue to be uneventful.
You are now entering a parallel universe...
Everything looks the same, everyone looks the same, the dog is still cute but annoying, AND YET... Everything is different. No super loud suction pump going off all the time. No super loud air compressor. No need to keep Ike's clothes and towels and blankets all downstairs. No need for Ike to sl...
Happy b-day, little guy. And a safe trip for all
Whirlwind!
Ike's birthday was yesterday! His nurses threw him a party with cake and ice cream and a present and balloon and everything. It was so sweet. He was a bit wonky still from having a bronch early in the morning, but he was with it enough to enjoy some ice cream. The big news is that his airway look...
Thank God for good surgeons, good drugs and the Disney Channel. What a trouper!
Just after the Ativan
He's sad now, but for a few minutes there he was flirting with me. (I imagine he might be seeing me with seven heads at this point, but he seems tolerant of them.)
Get some well-deserved rest. Sending love and prayers constantly.
A stylish new tube
It's not quite 10:30am and we've already been down to the OR and back and had rounds and everything. Whew. Dr. Fancy Pants downsized Ike's endotracheal tube this morning, which is a good thing. We'll see how he does with it today and tonight and then talk about when we can take it out. Ike's sti...
Vecuronium Holiday sounds like something from Camp Half-Blood. Thanks for the updates. Sending love and prayers.
Just to prove how these blog posts jinx things
As soon as I posted that, we had rounds and they decided to give him a "holiday" off the paralytic. They did a test called the "train-of-four" where they put electrodes on a nerve on his arm and give him a shock "stimulus". It's supposed to make his hand twitch between one and four times. Well, ...
Praying like mad - sending love and healing your way.
PS
I jinxed everything to hell with that post. Terrible night. Terrible.
Many, many prayers going out to you. Do you known there are eight different patron saints of throat ailments? They are all gonna get a workout!
Guess who's doing some laundry tonight?
Well. After that whole brouhaha with the schmutz yesterday, we had prepared ourselves that this just wasn't going to be the right time. We were still holding out hope for today, though, because we are gluttons for punishment. Ha. Even though the pulmo wasn't negative or discouraging yesterday, h...
Glad one part of the journey is over. Sending out prayers and good vibes for phase two.
The eating and the sleeping shall commence
dark and lonely roads except for the drunks and cops and that freaked out deer It took us 15 hours (not counting the four hours to Dallas), but we're here. On the way we accumulated lots of empty Mountain Dew bottles, tons of empty saline bullets, a whole bunch of gas receipts and one speeding t...
Sending lots of love and prayers for a safe trip and medical marvels made easy.
The time, it is upon us.
trachea travel the newest rage with toddlers Cincy here we come Tomorrow morning, my husband and I head out with Ike-a-saurus on an epic journey across five states (which has absolutely ruined any potentiality of downloading the Roadside America app, because they charge $3 per chunk of US for th...
Tell me when it's available on iTunes - I will so download it!
my new favorite song
The wee-er one has made up a song: "I'm having a heart attack, because I just pooped on my daddy." It's the best song ever.
Glad you are trusting your instincts - sending lots of love and prayers your way tonight.
Gonna spend the night
Well, we're going to hang out here tonight. The ER doc left it up to us, because we know Ike and what his baselines are and all of that. My mommy instinct says to stay for observation, so that's what we're doing. The last time my mommy instinct said that, he ended up being bagged in a hallway. So...
Glad the world is getting to see what an amazingly cute little guy Ike is - loved how he was playing with his tube in the picture. I think you should spend the money on anything that keeps you sane and happy until the karmic wheel rolls into "Happily Ever After" for you guys. If happiness is found in buying (or subscribing) to trashy celebrity mags or drinking coffee during an occasional child-free hour in a cafe (like me), then go for it!
Big time baby... Big-time, baby!
Ike hits the big time reaching new infant milestones and the New York Times Big Time news: Ike is in the New York Times! (You will have to register, but it's free and it's a great article.) Ron Lieber has a very touching article up about how people can help their friends when Bad Shit Happens...
Go Ike!
Calling all makers...
a construction zone building us a new normal with noise and plastic The equipment is here, the supplies are on their way. Thankfully, the nurses at the hospital helped us stockpile a bunch of stuff to help cut costs. It's all tucked stealthily away in the closet under the stairs; the Harry Potte...
What a cutie!
5 minutes of happy
A brief moment off the trach collar and without the artificial nose. Freedom! And despite 7 (!) self-administered feeding tube removals and 7(!) nurse-administered replacements, he still smiles. With his arms swaddled straight-jacket style, and hard-core steri strips stuck on his face, maybe this...
What a little lovey! You guys have so much good karma due you from the universe! Hang in there ...
Up and at 'em
Despite the on again off again rash and constantly being messed with, Ike-a-saurus was sprung from his hospital bed today, for a few minutes of R&R with mama. The on-call doc last night said that this little dude needs some lovin' and mama needs some lovin' so it was officially written down th...
Sending love and prayers your way.
Aaaaaaaand
It's MRSA. Am I going to have to get a fucking Segway and drive around this place yelling COME ONE like Gob in Arrested Development? Because seriously. COME ON. It's not an active infection or anything (knock on wood), so that's good. It's probably something he's had all along, that the whole fa...
Thanks for the surreal moments. Praying like mad for Ike and your family
A bizarre experiment
Shall I try to liveblog the Oscars and Ike-a-saurus tonight? I always love the Oscars. Tonight they seem more than irrelevant. They seem obnoxious and ostentatious. But my choices are, sit here and worry, or sit here and worry and liveblog. I may not be able to stick with it, depending on what c...
Sending lots of prayers and love to all.
At the hospital
Woke up this morning to a gush of blood and fluid. We are at the hospital not really knowing what's going on. Thanks for any good thoughts and well wishes you have to spare.
More love and prayers on the way
still dire
Things are still not super great. Very not super great. But I wanted to say your wishes and prayers and good thoughts mean everything to me and my family. Please, please keep them coming.
Sending lots of love and prayers your way.
going radio silent
the news is not not not good after seeing the perinatologist. I have no words right now. Just please pray for a miracle.
Sending lots of love and prayers your way.
going radio silent
the news is not not not good after seeing the perinatologist. I have no words right now. Just please pray for a miracle.
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