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Pat Sullivan
Scottsdale, AZ
Long-time sufferer of Mold Illness, TBI, Insomnia, Mercury-Toxicity, Chronic Fatigue, Irritable Bowel, and Adrenal Fatigue Syndromes. (But doing quite well now!)
Interests: Health, Politics, Faith, Business, Golf
Recent Activity
Hey, where have you been Pat?
It has been a long time since I posted. My apologies but I have been very busy working on my new software startup. Plus I have been feeling really great so I just don't think about my health much, KNOCK ON WOOD!! It always amazes me when I check back in here and see that so many people are still reading some of the stuff I have written. I can't think of anything that I would change here based on my experiences the past few years. But I do have some new things I want to share that I think could be really important for those of us who suffer or have suffered with chronic conditions. So I will just list them. 1. Iodine - I recently came across a book call "The Iodine Crisis." It is not particularly well written and is loosely a how to of a book on Iodine written by a Dr. Brownstein. I had no idea the info this book contains. I have been taking Armour Thyroid for years without much thought. There is nothing wrong with Armour but if you are deficient in Iodine that is more likely to be the cause of your thyroid problems. Women's issues like Fibroid tumors, Cysts in the breast and breast cancer all probably can be tied to a lack of iodine. Men can have issues with the prostate. Iodized salt doesn't even come close to doing it. It is tied to the toxins bromine and flouride as well since they mimic iodine and fit the receptors for iodine. High dose iodine will detox these toxins. I have been taking 50mg of Iodoral for about a month or so and feel even better. Energy very high. Sleep better. It is almost a CERTAINTY that you are deficient. Iodine... Continue reading
Posted May 21, 2013 at Pat Sullivan Blog
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I found Dr. Klinghardt to be mostly hype as well. Clearly a brilliant man, but he put me through a full battery of his type of testing and did not uncover a single thing that helped me. I had high hopes when I went to see him but was very disappointed. I discovered other ways that uy biggest issues were sensitivity to mold and a mild traumatic brain injury from a car accident when I was young. His methods did not even come close to detecting that.
It is also disgusting that he would simply not show up for your appointment with him. If he accepted a speaking engagement he OWED you a call. It is such a shame when doctors do stuff like that. I am sorry you were treated that way.
Why I no longer recommend Dr. Shoemaker - Updated
Update: I am not retracting anything I say below, in fact I could amplify but won't. But there could be a few reasons to still go see Dr. Shoemaker. First, if you need a doctor to help you get disability he could be very helpful at doing this. Second, if you need an expert witness in litigati...
This email was sent to me as a comment to my last...
This email was sent to me as a comment to my last post. There are some very good points in it. Also, XXXX turned out to finally get a positive Lyme test from Igenix. Hey Pat, I ran across your web page surfing the net. I'm a 50 year old lyme sufferer who ultimately realized supplementing anything I can into the normal range helps me feel more normal. The search for the magic bullet (Shoemaker's VIP ect.) has always been a dead end. I think you gave Shoemaker's patient very sound advice. I had amalgam problems without knowing it when I was bitten by a tick in 2003. I got the lyme rash didn't know what it was and went untreated for 12 months. By the time I received a diagnosis, I'd been told by several ID docs that I couldn't have lyme because my Western Blot was negative and I lived in "safe" state North Carolina. Ahh wrong. I was aggressively treated, improved with IM penicillin and IV zithromax. I did the cholestyramine protocol which helped a lot yet I still wasn't normal. After doing some research I realized a had reverse T3 that was sky high and a heavy metals problem. I supplemented with cortisol and florinef for my shot adrenals. I did Andy Cutler's protocol of low dose chelators with much improvement. Taking zinc and using supplements to dissolve biofilms is critically important and why many have chelated endlessly without significant improvement. Dr. Shoemaker objects to anyone adding an outside treatment to his biotoxin based therapies. I think that may help him as a researcher but is not in the best interests of his patients. He is on video saying never to take a steroid (cortef) and never to treat reverse t3. That is lousy advice. I'm... Continue reading
Posted Jun 17, 2012 at Pat Sullivan Blog
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Reply to a Shoemaker Patient
Well, I know I haven't posted in like, FOREVER. Fortunately for me I have felt really healthy for a long time and have moved on to other passions. Like doing my 3rd CRM startup. ACT! and SalesLogix were great but I think Contatta is going to be the best and biggest thing I have ever done. And for those of you interested, my supplement company Jigsaw Health is rocking!! I was amazed when I just checked back into the blog here. I still get several hundred readers per day with over 350,000 readers since I started years ago. Pretty amazing to me. I hope you all continue to find pieces to your health puzzle here. I thought I would post an email from and my reply to someone who wrote to me. Perhaps some of you would find it useful. Here it is: Dear Pat, I apologize in advance that this is so long, I tried to summarize but it is so hard to make this brief. I have been wanting to write you for a while now for advice, since you and I have so much in common, with the exception that you have solved your health problems. I am suffering poor health related to one, more or all of the following factors: mold exposure, candida, and amalgam fillings. I am also a frustrated Shoemaker patient and have the dreaded multisusceptible genetic type. I have never felt comfortable about ruling out lyme as a possible factor either as I live in an area where tick bytes are common. The next four paragraphs are background information and then I want to ask you for some specific advice. I have been suffering with increasing symptoms since Feb 2010, when we had water damage in our home I have all-over joint and... Continue reading
Posted May 23, 2012 at Pat Sullivan Blog
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Rich,
I experienced the same where my numbers would be awful but I would feel pretty good and then just the opposite! As I understand it MSH is so powerful that the body only puts it out when needed. Same with VIP. And their half lives are minutes, so they are gone in a very short time. So what do measuring them really mean??
Why I no longer recommend Dr. Shoemaker - Updated
Update: I am not retracting anything I say below, in fact I could amplify but won't. But there could be a few reasons to still go see Dr. Shoemaker. First, if you need a doctor to help you get disability he could be very helpful at doing this. Second, if you need an expert witness in litigati...
What I do to get and stay well from mold damage.
It has been way too long since I added to my blog here. I am sorry I haven't but my interests are elsewhere AND for the most part I feel great! So I don't research as much. I still get lots of hits on the blog and am glad people find the info useful in their recovery from chronic illness. I recently received an email that asked great questions and my answer to it seemed blog worthy. The two emails are long so you have to wade through them. I have changed some things in the email to me just to hide the identity. Hope you learn something useful! I am sorry that Typepad for some reason simply will not take my paragraph breaks in my reply. Hi Pat, I was reading your blog last night but couldn't not find any recent entries (past 09'). Are there any? I'm also a patient a Shoemakers (started in ) and have been on the CSM for 2 1/2 weeks. I would totally agree with your remarks on his bedside manner (which doesn't exist). It is most certainly his way or the highway. I have the dreaded genotype 11/3/52B and low msh-6 (I sleep OK, but it's a very non-restorative sleep), low vip-7, and ADH and Osmo are out of sync causing the constant dehydration. My TGF-B1 is slightly elevated @ 3320 but my C4a and C3a are good-as are VEGF and MMP-9. Shoemaker mentioned patients buying MSH and taking it. Are you aware of this or have you had any experience with it? The CSM was starting to work pretty well but then I went back to drinking a couple cups of coffee per day and today feel most of my symptoms back. Of course I will stop the coffee pronto but... Continue reading
Posted Jun 17, 2011 at Pat Sullivan Blog
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I like Dr. Walter Crinnion in Phoenix. Just google him for all his info. I wish I had more.
Why I no longer recommend Dr. Shoemaker - Updated
Update: I am not retracting anything I say below, in fact I could amplify but won't. But there could be a few reasons to still go see Dr. Shoemaker. First, if you need a doctor to help you get disability he could be very helpful at doing this. Second, if you need an expert witness in litigati...
This made me cry. Mom and Autistic son recovers.
I am not one to cry easily. But I just read this letter. This is why I started Jigsaw Health. Her son was autistic. Dear Mr. Sullivan, Many years ago, in the middle of the night, I e-mailed you regarding my son’s autism. You responded by telling me that although you couldn’t help my son, you might very well be able to help me. And good to your word, you did. Jigsaw Health Foundation covered the expense of restoring my teeth, removing nearly a dozen amalgam fillings. The first thing I noticed was the ‘metal’ taste was gone. Headaches….gone. Depression…gone. My overall health has improved significantly since that time. And so has something else… I found a doctor who was willing to help my son. Long story short, a Urinary porphyrin profile along with blood work proved he was heavy metal toxic and glutathione deficient. Over the next 10 months, he received 300 mg. of DMSA, 3 times a day, 3 days on, the 4 days off. The sheer amount of metal in his body was astounding. About 2 months into treatment the director of Lab Corp in Louisville called to ask me if he had ‘an ongoing occupational exposure to arsenic’ I answered ‘well, he’s in the second grade, does that count’??? There was a measured silence on the line before he was able to stammer….’you’re kidding, right’?? ‘Ah, nope, second grader, look at his age’…. The poor man was so uncomfortable that it could be palpated from 200 miles away. Cadmium, arsenic, nickel, mercury, tons of lead, though we never lived in a house with lead paint…so I have no idea there…. the arsenic was from chicken, shell fish, and I suspect our deck which was pressure treated lumber. His transformation was nothing short of phenomenal. He went... Continue reading
Posted Sep 24, 2010 at Pat Sullivan Blog
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A very good magazine and resource on mold illness....
A very good magazine and resource on mold illness. http://www.habitatquarterly.com/summer2010/ Continue reading
Posted Sep 24, 2010 at Pat Sullivan Blog
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Governor Jan Brewer called me!!
First let me apologize for not blogging more here about health. I have actually been planning an update on getting well from chronic conditions. My favorite topic. But I have had a LOT going on in my life. Some good. Some not so good. But my health is excellent I am happy to say. And I want to share some things I have learned and I will soon. Today though I wanted to say how honored I am to have been asked to serve on the newly formed Arizona Commerce Authority. Basically it is an effort for public and private sectors to join together to help Arizona foster job growth here in this state. It actually replaces the States Commerce Department. Not only that, I was asked to Chair the Entrepreneurship Sector Group. I was totally surprised 2 mornings ago when I got a call from Governor Jan Brewer and she personally asked me to do this. It was cool getting a call direct from the Governor and unlike me, I was at a loss for words. I couldn't decide whether to call her Governor or Madam Governor, so stupidly I called her Jan. Later though, I gathered my wits and called her Governor. It was also amazing that she called personally. I would have thought her assistant or someone else would call. But she said that this group is so important to her she wanted to call personally to recruit the people to head up the 4 key groups. I got to meet her today. Needless to say I was honored. The whole group is co-chaired by Jerry Colangelo. He is very serious about making this work. As for me, I feel a bit overwhelmed with having to figure out how I can make a difference and do something... Continue reading
Posted Sep 23, 2010 at Pat Sullivan Blog
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Cassandra,
A first! Someone who has commented here that VIP is working for them! That is great. VIP or Aviptadil is targeted at pulmonary issues so perhaps that is why you are experiencing some relief there. Can you point to other symptom relief? Have your "numbers" improved? VIP? MSH? TGFb1? C4a?
However, how long have you been using LDN? I have lots of reports that it has helped a lot of mold patients. Still have not tried it myself though I now have some. Is it possible LDN is what is helping?
Do you get really tan with Melanotan 2? I did and needed to stop, plus did not seem to help anything anyway. But I got a GREAT tan.
Finally, what do you mean by Far Away? Is that a name of a company? VIP used to be compounded by Hopkington in MA I believe.
Thanks for the comment. Would appreciate more info!
Pat
Update 11 - How is VIP doing for me?
I now have had the opportunity to try VIP. I am in the final week before I have labs drawn to see what my "mold" numbers are now. I have been on a schedule of 4 times per day which is 50mcg's per nasal spray.I drop down to 2 per day for a month and then get tested again. I have had partial but...
FArAway,
Aviptadil does break down rapidly. And the version Shoe is using has not been tested in that regard. Even the Pharmacy changed the expire date to 30 days even though your supposed to be able to use it for 60 days or more if you follow Shoes protocol. Then there is the question whether or not either the pharmacy or Shoe can even legally use it since it does not have marketing approval. It is really only available for experiments on animals the way I read the literature on it. But that is another story. You are correct. Better VIP and MSH stuff coming. Get here!!
Update 11 - How is VIP doing for me?
I now have had the opportunity to try VIP. I am in the final week before I have labs drawn to see what my "mold" numbers are now. I have been on a schedule of 4 times per day which is 50mcg's per nasal spray.I drop down to 2 per day for a month and then get tested again. I have had partial but...
Brian,
I am so sorry for your experience. Unfortunately it is not unusual. I am yet to find anyone with a great experience with VIP. In fact, all my numbers got worse using it for 3 months. And yet, the "experiment" goes on.
Why I no longer recommend Dr. Shoemaker - Updated
Update: I am not retracting anything I say below, in fact I could amplify but won't. But there could be a few reasons to still go see Dr. Shoemaker. First, if you need a doctor to help you get disability he could be very helpful at doing this. Second, if you need an expert witness in litigati...
Good comments. Most likely Losartan made you feel bad because it lowered your already low BP. If you take Licorice Root (Natures Way, up to 9 caps per day - gradually increase to where BP is normal) it should help a lot. Licorice also actually calms the innate inflammatory response as well. Curcumin (BCM-95 and Curcugel) also dramatically lower TGFb1 and other inflammatory markers.
We are all different for sure. VIP is worth a try. I don't personally know anyone who has been helped but I am sure there are some.
I keep hearing about LDN. I am going to have to give it a try!
At the end of the day, when someone has been sick a long time with mold cascade, I believe there is usually brain damage that has taken place. I believe that is true in me. No amount of anti-inflammatories, VIP, CSM etc is going to reverse that. But much relief can be had by taking Rx meds to help restore brain chemistry as best as possible. Klonopin for anxiety, Pristiq for depression, low dose seroquel, trazadone, klonopin, doxepin for sleep may well help tremendously. Also hormone replacement where needed. Cortisol, DHEA, male or female hormones, thyroid etc. Have to take a totally holistic approach to feel as well as possible. Does not make sense to try to fix the underlying condition when we have struck out for years and years. Get relief and feel as good as you can. Most meds can be compounded with NO additives at all.
Hope this helps.
Pat
A typical mold patient
z I get emails like this a lot. I thought his questions and my answer could be useful. Dear Pat, I'm a former who lives in . I will keep this brief. My health has been declining for 4 years. Problems with digestive system, nervous system, lungs and sinuses. Doctors wer...
Brain Injury more prevalent.
The military has done a great job of recognizing that soldiers surviving concussive injuries are very prone to long term effects. A TBI (Traumatic Brain Injury) often begins to show up in terms of symptoms within 6 - 8 weeks after an event. Symptoms most often observed early on are insomnia, anxiety, depression, ADD like symptoms (inattention, emotional outbursts like quick anger, boredom). This is true in the non-military as well. Falls and car accidents can also damage the brain. That proved true for me when after a severe whiplash car accident in college I began to experience symptoms about 6-8 weeks after the accident. Here is a good article talking about TBI's and how they are more prevalent than we ever thought. Continue reading
Posted Mar 18, 2010 at Pat Sullivan Blog
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Mar 15, 2010
The Canadian Press: 'My heart, my choice,' Williams says, defending decision for U.S. heart surgery
The Canadian Press: 'My heart, my choice,' Williams says, defending decision for U.S. heart surgery Posted using ShareThis Continue reading
Posted Feb 23, 2010 at Pat Sullivan Blog
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I cover it here in the blog. http://www.patsullivan.com/blog/2009/08/update-13-how-can-you-learn-if-you-have-mold-related-illness.html
A typical mold patient
z I get emails like this a lot. I thought his questions and my answer could be useful. Dear Pat, I'm a former who lives in . I will keep this brief. My health has been declining for 4 years. Problems with digestive system, nervous system, lungs and sinuses. Doctors wer...
Entrepreneur: Being one and raising money
Here are links to 2 talks I have given the past 2 years. The first one is about things I have learned the hard way being an entrepreneur. Things you have not read in a book! The second is about raising money for a new venture where I reveal a few secrets I have learned along the way. I thought these might be useful in these days where people are either trying to find work or are trying to start a business so they can work. And perhaps create jobs. Hope you enjoy.Being an Entrepreneur. Raising money. Continue reading
Posted Feb 4, 2010 at Pat Sullivan Blog
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It would be great to be able to have him as your consultant while you get treated by someone else who understands and uses his approach. Let us know how it goes!
Pat
Why I no longer recommend Dr. Shoemaker - Updated
Update: I am not retracting anything I say below, in fact I could amplify but won't. But there could be a few reasons to still go see Dr. Shoemaker. First, if you need a doctor to help you get disability he could be very helpful at doing this. Second, if you need an expert witness in litigati...
I hate the vaccine schedule. See here for a better schedule. http://www.jigsawhealth.com/resources/vaccination-schedule
Don't get the Vaccine!
Dr. Russell Blaylock, a retired neurosurgeon and writer of the Blaylock Wellness Report does not like the Swine Flu Vaccine. I had the good pleasure a few years ago, to have dinner with Dr. Blaylock. A very reasonable and very smart guy. He said the following in his most recent Newsletter: "N...
Cambridge is the only one who does it that I know of and they are the ones I think are very sketchy. example: Two blood samples taken 15 minutes apart. Results for C4A and TGFb1 for first comes back in 17 days. Second comes back 67 days. Example: C4a is low and I feel shitty. Months later I feel good and C4a is VERY HIGH.
A typical mold patient
z I get emails like this a lot. I thought his questions and my answer could be useful. Dear Pat, I'm a former who lives in . I will keep this brief. My health has been declining for 4 years. Problems with digestive system, nervous system, lungs and sinuses. Doctors wer...
A typical mold patient
z I get emails like this a lot. I thought his questions and my answer could be useful. Dear Pat, I'm a former who lives in . I will keep this brief. My health has been declining for 4 years. Problems with digestive system, nervous system, lungs and sinuses. Doctors were unable to find the cause. Recently, a testing company discovered mold growth behind the walls of my home office where I've worked for the past six years. The office had severe water intrusion problems during this time. I've since moved out and have disposed of just about all of my personal belongings. What's left is sealed and in storage. Unfortunately, I'm unable to be near it at this time. I went to Dr. Shoemaker for diagnosis and treatment. All tests verified mold illness: double genotype (not the dreaded, thank goodness), MSH of 8, VIP of 10, C4a over 10,000, etc. I've been on the cholestyramine for 7 months. Some problems have improved such as ADD, confusion, leg and foot cramping and twitching and severe burning in my spine. - however, I'm still experiencing dehydration, fatigue, depression, brain fog ad severe burning sensation in my neck and head. It's miserable and I'm unable to work. I've lost everything - health, finances and property. Shoemaker will not give me Actos or VIP replacement because my biomarkers have not improved in the 9 months he's been treating me. In fact, my c4a has doubled from 5,000. to 10,000. I need help. I'm renting a room in a house. All vents have heppa filters in them and I have a large heppa air cleaner in my room. I IRMI tested the house though I spend 95% of my time in the sealed room. The results were 5.28. Not sure what that means. Is... Continue reading
Posted Jan 19, 2010 at Pat Sullivan Blog
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